A Dream Getaway For Families in the Rare Disease Community
Welcome to Rare At Sea
As a family in the rare disease community, you know how rare and precious it is to find a place where your family can truly relax, connect, and have fun—without the usual worries. That’s why Rare At Sea was created, inspired by the amazing connections built through podcasts like Two Disabled Dudes and Once Upon A Gene.
Effie Parks (host of Once Upon A Gene) and Sean Baumstark (co-host of Two Disabled Dudes) understand firsthand how important it is to have spaces for our community to come together. From years of attending rare disease conferences, we’ve found that the real magic happens outside the sessions—when we can unwind, laugh, and build friendships with people who just “get it.”
Rare At Sea will bring that same magic to a whole new setting: a cruise to the Bahamas in recognition of Rare Disease Day 2026! With modern cruise ships offering accessible accommodations for diverse needs, this trip is designed to help families like yours enjoy a true getaway, complete with sunshine, great company, and maybe a margarita or two.
Why Rare At Sea?
Accessible Adventures
Cruise ships are thoughtfully designed with accessibility in mind in public areas and private cabins. Enjoy a comfortable and fun space that considers various needs and abilities.
Community & Connection
Build meaningful relationships in a supportive environment. Connect with others who understand your journey, share experiences, and create lasting friendships on board.
Relaxation & Fun
Unwind with a variety of activities suited to your interests. Whether it’s lounging on deck, savoring delicious meals, or enjoying live entertainment, there’s something for everyone to enjoy.
